Category: Patient Stories

Nothing fun about it, according to Graham Lewis

Graham Lewis insists that “fun run” is most definitely an oxymoron, and that there’s nothing fun about it, especially when the weather is cold and miserable.  And cold and miserable it was when Graham completed this year, only the third time it’s rained for the event in the past 50 years according to Graham.  2025 […]

Celebrating 50 Years since Australia’s First Bone Marrow Transplant

St Vincent’s Hospital Sydney has marked a remarkable milestone: the 50th anniversary of Australia’s very first bone marrow transplant. The commemoration began with Associate Professor Anthony Dodds, who reflected on that groundbreaking moment in 1975 when the first bone marrow transplant was performed. He paid tribute to the extraordinary teamwork and donor generosity that made […]

100 Years of Life Post Transplant: Meet the Transplant Games Champions Who Refuse to Sit Still

100 years of life What does 100 years of life look like after a bone marrow transplant? It looks like Lisa, Jonathon, and Kerrin — three extraordinary Australians who’ve not only survived bone marrow transplants, but have gone on to thrive, compete, and inspire at the Australian and  World Transplant Games. Between them, they’ve lived […]

Rolling with the Punches: Jenny’s Journey through Two Bone Marrow Transplants and Beyond

Jenny Nixon is no slouch. She’s a mother to two sets of twins, who she raised as a single mum from when they were six and three years old, and is a proud grandmother to four. She runs her own baking business, and is the self-professed ‘Queen of Melting Moments’ in Wagga Wagga. She is […]

Diamond-Blackfan Anaemia, and Poppy’s fight for life.

Poppy Pickett has had more than a lifetime’s worth of medical poking and prodding, with transfusion after transfusion, endless visits to hospitals and specialists, and months in isolation. And she’s only five years old.  Poppy was diagnosed with Diamond-Blackfan Anaemia (DBA) just six weeks after she was born. DBA is a rare disease in which […]

Living with long-term GvHD – Serina’s story

Thursday 7th November 2002 is a day Serina Dosen will never forget. It’s the day she received her new stem cells, and a second chance at life. But it’s also the day she began her “new normal” life, with a body that requires more care than most. Serina is living with long-term GvHD. “Looking after […]

Hidden financial cost of BMT

Meagan Clark* is a university lecturer, married, with two kids – all the usual stuff – and considers herself incredibly privileged. But despite her apparent advantages in life, she still struggled with the blows dealt to her and her family during her cancer treatment. Meagan’s story About 5 or 6 years ago, I was diagnosed […]

Stacey’s Story: A Mother’s Journey through Andre’s GATA2 Deficiency and Transplant

GATA2. It sounds like something from a SciFi movie, doesn’t it? Perhaps the name of a newly colonised planet, or a space station or something. But no. It’s a protein that regulates gene expression and it plays a key role in the production of your blood cells. And, like young Andre, you can be deficient […]

Living with Multiple Myeloma – Aamu’s story

You don’t expect to have to wear nappies and learn to walk again when you’ve been successfully adulting for decades. And you don’t expect to follow that up with having to watch your 19-year-old learn to walk again either. But that’s what happened to Aamu. It all began with chronic back pain with no apparent […]

Anne’s gift in memory of Katherine Robertson

Katherine Robertson, pictured in 1999, not long before her diagnosis with acute lymphocytic leukaemia. Anne Robertson  Anne Robertson was a refined lady, always impeccably presented, with a love for history and family. Anne had a love of the arts enjoying the theatre, Shakespeare and Jane Austen, and she spent much time travelling around UK and […]

Bedside Nursing Degree for Courtney Hughes!

Courtney Hughes’ pathway to her nursing career is not your average one, but then Courtney probably isn’t your average kind of girl. Courtney was leading an active life, busy working as a prison officer doing lots of physically demanding work leading bush regeneration projects with crews of inmates, and on top of that doing Crossfit […]

BMT for Crohn’s Disease – The worst and the best time of my life

“My bone marrow transplant was the worst and the best time of my life.” That’s how Jordan Lambropoulos describes her ground-breaking stem cell transplant now that she has another year of living under her belt. Bone marrow or stem cell transplants are nothing new, so what makes Jordy’s transplant so ground-breaking? Well, as far as […]

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