Patient Information Hub
The Arrow Foundation Patient Information Resource Hub is designed to provide patients and families with easy access to trusted, supportive, and up-to-date information throughout their healthcare journey. From treatment guidance and recovery support to wellbeing resources and practical advice, our hub aims to empower individuals with the knowledge and reassurance they need, all in one accessible place.
Australian Resources:
Stem Cell Donors Registry Australia
Australian Bone Marrow Donor Registry (ABMDR) is Australia’s national organisation responsible for recruiting volunteer stem cell (bone marrow) donors and matching them with patients who need life-saving transplants. It also works with international registries to help patients around the world find compatible donors and supports the coordination of stem cell donations from Australia.
Transplant Australia
A charity that supports people who have received an organ or tissue donation including blood. Transplant Australia lead programs which encourage physical activity to increase survival rates in transplant recipients, including the Transplant Games.
Agency for Clinical Innovation NSW
A specialist agency within NSW Health that works with clinicians, patients, and health system leaders to design, develop, and implement innovative models of care across the healthcare system in New South Wales.
Australian Clinical Trials
A national initiative that provides information and guidance about clinical trials conducted in Australia, helping patients, carers, and healthcare professionals understand how to access and participate in research studies.
Gather My Crew
Gather My Crew is an Australian not-for-profit platform that helps people going through difficult times—such as illness or recovery—coordinate practical support from friends, family, and their wider community. It allows users to organise help with everyday tasks like meals, transport, childcare, and household duties through a simple online system.
This Way Up
An Australian digital mental health service that provides evidence-based, clinician-developed online programs and tools to help people manage anxiety, depression, stress, and related conditions. It is designed to support self-guided therapy alongside professional care, improving access to mental health treatment.
Leukaemia Foundation
A leading Australian not-for-profit organisation dedicated to supporting people affected by blood cancers such as leukaemia, lymphoma, and myeloma. It provides practical and emotional support services, accommodation for patients needing to travel for treatment, advocacy, and funding for research into better treatments and cures.
Maddie Riewoldt’s Vision
Not-for-profit organisation dedicated to funding research, raising awareness, and providing support for people affected by bone marrow failure syndromes, while working to improve diagnosis, treatment, and outcomes for patients and families.
Lymphoma Australia
A national not-for-profit organisation dedicated to supporting people affected by lymphoma and chronic lymphocytic leukaemia through education, patient support services, awareness campaigns, and advocacy for improved treatments and care.
Rare Cancers
Rare Cancers Australia is an Australian not-for-profit organisation that supports people affected by rare and less common cancers through personalised care, advocacy, and access to treatment options, while also working to improve awareness, research, and health system navigation for patients and families.
Myeloma Australia
A national not-for-profit organisation dedicated to supporting people affected by multiple myeloma through education, specialist nursing support, information services, and advocacy, while also working to improve treatments and outcomes for patients and families.
Lifeblood Australia
Australia’s national blood and plasma collection service, responsible for collecting, testing, and supplying safe blood products to hospitals, while also supporting donors and advancing research to improve transfusion and patient care outcomes.
Australian Marrow Match
Australia’s national stem cell donor registry, connecting patients in need of a life-saving bone marrow or stem cell transplant with volunteer donors across Australia and around the world.
Gift of Life
An international organisation dedicated to recruiting stem cell and bone marrow donors, facilitating life-saving transplants, and providing hope to patients searching for a matching donor.
Challenge
Not-for-profit organisation in Victoria that provides practical, emotional, and social support to children living with cancer and their families throughout their treatment journey.
Know GVHD
A patient-focused education initiative dedicated to improving awareness and understanding of graft-versus-host disease (GVHD), providing accessible information, resources, and support for patients, carers, and healthcare professionals affected by this complication of stem cell transplantation.
Diet and Nutrition guidelines
A fact sheet that provides guidance for people who have undergone a blood and marrow transplant (BMT), explaining how diet plays an important role in long-term recovery, managing side effects, and reducing the risk of complications such as infection, malnutrition, and chronic health conditions.
Fight Cancer Foundation
Fight Cancer Foundation provides purpose-built accommodation centres that offer a “home away from home” for patients and families who must travel long distances for life-saving cancer treatment. These centres help ease the emotional and financial burden of treatment by keeping families close to hospitals in a safe, supportive environment.
Hero Hunter Foundation
Not-for-profit organisation that provides practical support to families with children undergoing cancer treatment or living with certain blood disorders. It helps ease the day-to-day burden of treatment by offering services such as meals, home support, and respite care, ensuring families can focus on their child’s health and wellbeing.
Ronald McDonald House Charities
A global not-for-profit organisation that provides accommodation, support services, and care programs for families with seriously ill or injured children who need to travel for treatment, helping keep families together during difficult times.
Lionheart Camp for Kids
Lionheart’s Grief Pathway provides professional, accessible, and sustained grief support to WA children aged 0–17 following the diagnosis of serious illness or death of a parent, sibling or important person.
Lifeline – 24/7 Crisis support
Provides free, confidential crisis support for people experiencing emotional distress, crisis, or overwhelming situations.
Beyond Blue
Beyond Blue is an Australian mental health organisation that provides free, confidential support, information, and counselling for people experiencing anxiety, depression, or emotional distress.
EBMT Patient Prompt List
The EBMT Patient Prompt List is a practical guide designed to help patients and families feel more prepared and confident when attending appointments related to stem cell or bone marrow transplantation.
International Resources:
BMT Infonet
A US based charity to support transplant and CAR-T cell therapy recipients. They have a large range of educational materials available including their annual Survivorship Symposium held online with presentations from leading transplant experts.
Anthony Nolan
A US based charity to support transplant and CAR-T cell therapy recipients. They have a large range of educational materials available including their annual Survivorship Symposium held online with presentations from leading transplant experts.
NMDP
Previously known as “Be the Match”, a US based organisation that manages the US based donor registry and provides information resources to patients.
Mayo Clinic
US based not for profit organisation committed to clinical practice, education and research
American Cancer Society
The American Cancer Society is a leading voluntary health organisation dedicated to improving the lives of people affected by cancer through research, patient support, advocacy, and education.
Blood Cancer United
Blood Cancer United is a leading international organisation focused on funding blood cancer research, supporting patients and families, and advancing treatments for leukaemia, lymphoma, myeloma, and other blood cancers.
National Bone Marrow Transplant Link
National Bone Marrow Transplant Link is a not-for-profit organisation dedicated to helping patients, caregivers, and families navigate the bone marrow and stem cell transplant journey through education, resources, and peer support programs.
GVHD Alliance
GVHD Alliance is an organisation focused on raising awareness, improving education, and supporting patients and families affected by graft-versus-host disease (GVHD), a serious complication that can occur following stem cell transplantation.